Monday, September 19, 2011

The Last Outfit

The Lien Foundation has done it again.  They're making us smile by doing unconventional projects that incorporate ideas about dying into the arts.  Like their project "Happy Coffin" done as apart of the overall Life Before Death campaign, the Last Outfit project attempts to reduce the stigma that surrounds death and dying.

This photographic project was instigated by the The Straits Times, a leading Singapore newspaper, who partnered with the philanthropic Lien Foundation. Eight professional photographers captured 23 subjects in their outfit of choice for burial.

Most burial outfits are favorite clothing picked out by a patient just prior to death, or very often picked by family members. The idea traditionally is not about creativity, but respectful formal wear.

The thought from the Last Outfit project was, what if this were changed? What if our final outfit was a statement about who we are? This personal flare is quite obvious in the photographs taken.  Lee Poh Wah, CEO of the Lien Foundation says, "Each exit outfit is one that best expresses the subjects' unique life. Their outfits and candid attitude have given us a fresh and fun perspective on how to deal with death. If there's something like funeral fashion,they are setting a trend by wearing their souls on their sleeves"

One of the subjects actually was on hospice for this project. Madam Foo Piao Lin had cancer and took her role more seriously. She chose an expensive cheongsam, which she had never owned, for her final outfit. She has since passed, byt her wish was fulfilled as she was buried in her cheongsam. She is pictured in the middle photograph in the series at the bottom.

The photographs are definitely conversation starters. I wonder, though, if faced with death like Madam Foo, if indeed these same outfits would be chosen.

What do you think? To those involved in hospice, how often is the last outfit actually brought up or discussed? Do you like the idea of creativity in a burial outfit or is it too much?

To scroll through the 23 images and read short bio's of the participants visit The Last Outfit web page.

Monday, September 19, 2011 by Amy Clarkson · 2

Monday, September 12, 2011

Brendan's Death Song

When I was listening to the newest Red Hot Chili Pepper album, I'm with You, I discovered the song "Brendan's Death Song". The interesting lyrics really caught my attention. "Let me live, so when it's time to die, even the Reaper cries. Let me die so when it's time to live another sun will rise."

Brendan Mullen was a nightclub owner in LA. The Red Hot Chili Peppers credit him with giving the band their start. He was a friend to the band for many years and died in 2009, shortly after his 60th birthday, of a massive stroke.

The day the band found out about his death was the first day of rehearsal with their new guitarist Josh Klinghoffer. From lead singer Anthony Kiedis, "When I got to rehearsal I delivered the news to my band that we had lost this beautiful person. And then we started playing without really talking. Probably the second thing that came out of that jam was the basis for Brendan's Death Song." Kiedis goes on to say that while the song does sound like a death march, they mean it to be a celebration. "My favorite part of the song came much later-which is the bridge section, where it gets quite dark for a moment and there's this feeling of falling into the unknown abyss of dying. So, yes, we lost of good man, but he had a very full life."





Well if I die before I get it done will you decide?
Take my words and turn them into signs they will survive,
Because a long time ago I knew not to deprive.
It's safe out there now your every where just like the sky,
And you are love, you are the lucid dream you are the ride
And when you hear this you know it's your jam it's your good bye

Like I said you know I'm almost dead, you know I'm almost gone
And when the drummer drums he's gonna play my song to carry me along
Like I said you know I'm almost dead, you know I'm almost gone
And when the boatman comes to ferry me away to where we all belong

We all cross when we were feeling lost it's just the time.
Kateri cried the day her lover died, she recognized,
Because you gave her a life of real love it's no surprise.
The nights are long but the years are short when you're alive,
Way back when will never be again it was a time.
It's gonna catch you so glad I met you to walk the line.

Like I said you know I'm almost dead, you know I'm almost gone
And when the drummer drums he's gonna play my song to carry me along
Like I said you know I'm almost dead, you know I'm almost gone
And when the boatman comes to ferry me away to where we all belong

Like I said you know I'm almost dead, you know I'm almost gone,
And when the drummer drums he's gonna play my song to carry me along.
Like I said you know I'm almost dead, you know I'm almost gone,
And when the boatman comes to ferry me away to where we all belong.
Let me live, so when it's time to die, even the Reaper cries.
Let me die so when it's time to live another sun will rise.

Yeah, yeah yeah, yeah yeah

Like I said you know I'm almost dead, you know I'm almost gone
And when the drummer drums he's gonna play my song to carry me along
Like I said you know I'm almost dead, you know I'm almost gone
And when the boatman comes to ferry me away to where we all belong
Like I said you know I'm almost dead, you know I'm almost gone
Like I said you know I'm almost dead, you know I'm almost gone
Like I said you know I'm almost dead, you know I'm almost gone

Monday, September 12, 2011 by Amber Wollesen, MD · 0

Monday, September 5, 2011

Casey Shannon

I came across this inspiring story of artist Casey Shannon.  Casey is an artist that lives in Carmel Valley, California. At the age of 36, already a mother, wife and high school art teacher, Casey had a massive left hemispheric stroke.  The stroke was debilitating, leaving her aphasic, wheel chair bound and with no use of the right side and little use of her left side.

She writes about the loss of identity and longing for her old self on her website here.  As a part of her recovery she learned about Wabi Sabi which is the Japanese tradition of celebrating the beauty in what's flawed or worn.  She also turned to art, writing that, "as soon as I could sit for more than just a minute in my wheelchair, I began practicing holding a pencil in my left hand and started doodling and scribbling and such. I intuitively knew that, for me, I needed to get drawing again. And fast, if I was going to save myself"

She ended up drawing 5 pictures a day, having incorporated it into her daily home rehab program. The act of creative expression helped to improve her self-worth and self-esteem.

It's been 19 years since her stroke, and Casey has regained her speech and the ability to walk, though has lost the use of her dominant right arm.  She continues to paint, teach and inspire other stroke survivors with her story.

Casey graciously includes art work on her website from before the stroke, during recovery and current pieces. The first piece above is a sketch done in the year or two prior to her stroke. Her drawings from her recovery period, are taken from about 4 years post stroke. At that point in her process she combined inspirational sayings with her drawings, like the picture to the right.

As she has recovered,  her style completely changed, not only because she now uses her left hand, but because she now does contemporary sumi-e paintings. Sumi-e painting incorporates meditation before painting. As Casey describes on her artist's page, "I concentrate on trying to capture spirit as the ink is transferred to the paper with the stroke of the brush....If your intention is correct, the object in the picture seems to 'breath and take on life'"

I find Casey's story a good reminder of the power art can play with our patients dealing with debilitating disease.

For more of Casey's paintings check out her galleries here.

Monday, September 5, 2011 by Amy Clarkson · 0